The Impact of the Media Discourse on Subjective Barriers in the HIV/AIDS Prevention among Youth in Russia

Characteristics of state HIV/AIDS prevention system in Russia. The notion of discourse through the prism of influence mechanisms. Basis for HIV testing subjective barriers of Russian youth. Correspondence of media discourse and subjective barriers.

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FEDERAL STATE AUTONOMOUS EDUCATIONAL

INSTITUTION FOR HIGHER EDUCATION

NATIONAL RESEARCH UNIVERSITY

HIGHER SCHOOL OF ECONOMICS

Faculty of Social Sciences

The Impact of the Media Discourse on Subjective Barriers in the HIV/AIDS Prevention among Youth in Russia

Mescheryakova Olga Alexandrovna

Table of Contents

  • Introduction
  • 1. Existing HIV/AIDS prevention system and media environment
    • 1.1 Characteristics of state HIV/AIDS prevention system in Russia
      • 1.1.1 State efforts in the area of HIV/AIDS prevention
      • 1.1.2 HIV prevention system in Russia
    • 1.2 Media discourse in HIV prevention
      • 1.2.1 The notion of discourse through the prism of influence mechanisms
      • 1.2.2 Existing HIV /AIDS media discourses in Russia
    • 1.3 Subjective barriers in HIV/AIDS prevention
      • 1.3.1 The notion of barrier
      • 1.3.2 The notion of stigma
      • 1.3.3 Basis for HIV testing subjective barriers of Russian youth
  • 2. Methodology
  • 3. Findings and results
  • 4. Correspondence of media discourse and subjective barriers
  • Conclusion
  • Bibliography
  • Appendices

hiv aids barrier youth

Introduction

The HIV epidemic is a serious problem affecting the health of individuals and high level of mortality all around the world (WHO, 2017). This fact makes it reasonable for the state to take preventive measures. Russia is not the exclusion. In our country the steps are taken by through the following directions:

1. State support. It is represented by a network of specialized medical institutions, a unified system for monitoring the HIV / AIDS epidemic, medical supervision, diagnosis and treatment of HIV-infected persons in accordance with the standards approved by the Ministry of Health of Russian Federation, palliative care programs for patients with HIV infection and HIV prevention programs with state financing (Urazbagambetov, 2013). County Coordinating Mechanism to fight HIV/AIDS and epidemic (CCM) (Federal Center, 2017).

2. International organizations influence (UNO, WHO, Global Fund to Fight AIDS, Tuberculosis and Malaria) (Gorlinskiy, 2008).

3. Non-government organizations' (NGOs') support. In addition to taking part of NGOs in preventive projects in cooperation with the state (Mazus, 2011), they make independent steps in HIV prevention (Pape, 2010).

4. Close environment (family, relatives, and friends) support.

5. Daily influence of sources (education system, media, etc.).

Supported with profound theoretical basis on HIV/AIDS issue something slows down the efficiency of prevention process in the frames of specified directions. It can be seen on the example of statistical data which show the growth of incidence rate not only throughout the country, but also among representatives of different social groups with the trend of decreasing the age of HIV-infected. (Spid-vich-zppp.ru, 2017). By the end of 2017 924,600 of HIV-infected people have lived in Russia (according to calculations of Western experts this figure is much higher and makes up more than 2 million people). In terms of the growth rate of HIV infection incidence Russia took the 3rd place after the South African Republic and Nigeria. Age structure shows that leading groups of HIV-infected are people in the age of 30-40 and 40-50 years. However, it should be noted that with a low level of testing coverage for adolescents and young people, more than 1,100 HIV infections among persons aged 15-20 years are recorded annually. According to preliminary data, the largest number of HIV-infected adolescents (15-17 years old) was registered in 2016 in Kemerovo, Nizhny Novgorod, Irkutsk, Novosibirsk, Chelyabinsk, Sverdlovsk, Orenburg, Samara regions, Altai, Perm, Krasnoyarsk Krai and the Republic of Bashkortostan. The main cause of HIV infection among adolescents is unprotected sex with an HIV-infected partner (77% of cases in females, 61% in males). All these facts depict existing social problem, its topicality and at the same time the puzzle which is the basis of research question of the present work: `What are the features of media discourse related to HIV issue in Russia and what subjective barriers formation they contribute in'?

The data mentioned above force to search for the answers in the direction of formulated research question. It can be supposed that the problem is not single-valued and has definite factors of limitation.

Speaking about possible factors influencing the effectiveness of prevention process they may be both objective and subjective. As soon as objective side is connected mostly with infrastructural projects, it can be supposed that obstacles can be connected with drawbacks of financing programs, low availability of treatment or contraceptives, etc. At the same time reasonable involvement of all the population into HIV testing programs is on the initial stage. It is applied to definite groups (pregnant women, job-seekers, etc.) and is hardly to be implemented as obligatory at once. At the same time subjective factors connected with internal barriers to testing of healthy and infected people can play great role. It means that healthy people resisting to testing procedures can't learn their HIV status, thus, increasing the probability of new HIV cases. At the same time infected people resisting to treatment provoking mortality statistics increase. Mentioned subjective barriers may include low level of trust, awareness, stigmatization of the topic, etc. Present research interests relate exactly to the subjective side of the matter.

Consideration of the whole prevention system in Russia gives the possibility to suppose that the factor of subjective barriers may be more significant. Notwithstanding the fact that objective and subjective factors have equal importance, the above assumption allows advancing in understanding the issue despite its limitation. That's why the object of this survey is subjective barriers of the youth in relation to HIV testing and subject is components of media discourse on HIV issue and their associations with subjective barriers. Such representation can be possible due to the essence of subjective barrier which is formed on the basis of social environment participants which surround young person as a result of primary and secondary socialization. Among them there are relatives, friends, teachers, etc. Existing discourses, the processes of linguistic activity and the systems of concepts that presuppose them, connected with the problem of HIV prevention and the issue itself are transferred through media, Internet, etc. Together with environment they form public opinion which influences young people. It is rather important, taking into account limited knowledge of HIV topic among population. It can be seen on the example of the study `What do young Russians know about HIV?'.

On World AIDS Day 2016, the research department of the charity fund `Need help' presented the results of this study. Together with the online research agency Tiburon Research, the fund experts interviewed 911 Internet users. Most of them were teenagers and young adults from 16 to 23 years. For comparison, experts interviewed people aged 40 to 49 years. (Tiburon Research, 2017).

The study revealed two conflicting trends: HIV status evokes empathy in young people, not condemnation. Young people do not represent HIV-positive people as `vicious', `homeless', `prostitutes'. Almost 90% of respondents did not express such prejudices. However, the older the users, the more people among them who believe that HIV is transmitted in at-risk groups: among homosexual men and drug addicts. The majority of adolescents and adults are not sufficiently informed about the modes of HIV transmission and life with it. Many were confused about whether HIV can be infected from parents at birth, through general manicure and cosmetic accessories, with a kiss or through insect and animal bites. The least consent was demonstrated by respondents as to the ways of HIV transmission through a common razor, sex between women, blood on the skin, and from mother to child.

As a result of functioning of two flows such as government efforts with the course on preventive measures and media streams, a kind of puzzle arise. On the one hand, HIV prevention is provided through infrastructure and the possibility of free testing guaranteed by the state. The networks of pharmacies are capable to provide population with condoms and syringes. Moreover, the prices for the first ones were decreased (Spid.center.ru, 2017). In addition, basic information on HIV/AIDS issue is in free access. On the other hand, statistics shows that in 2016 the role of the sexual way of HIV transmission has grown up to 50.2% and overtaken the narcotic one with non-sterile syringes 48.7%. It was surprising that heterosexual contact (48.7%) dominated over homosexual (1.5%). In 2017 this trend was strengthened: in the first half of the year the share of the sexual pathway for HIV infection was 52.2% including 1.9% in homosexual way, and the share of injecting drug use was 46.6%. It influenced the whole picture of HIV-infected growth. (Spid-vich-zppp.ru, 2017)

These facts suggest a thought that those subjective barriers which the youth has form insufficient readiness / involvement into the process of prevention. Along with other sources subjective barriers are presumably formed by media discourse (which was defined to be studied). This idea can be tracked in the informational and educational project `Code 103' about demonization of HIV/ AIDS issue in previous times by media. Due to the fact that for a long time this problem was depicted as something awful and infected people, especially representatives of LGBT communities, were shown through hate language, `Code 103' told about the need to change the trends in media prevention. (Spid.center.ru, 2017)

Following this idea it should be paid attention that mentioned data is just particular case of the existing problem. Its essence is that media contribute into formation of definite agenda reflected in teachable attitudes and behaviors among the youth. In connection with mentioned it can be supposed that the problem of HIV prevention media discourse impact on subjective barriers is actual.

In order to answer research question methodological approach will be applied on studying of media discourse component and subjective barriers presumably formed by these components. Therefore, What are the features of media discourse, if any. Due to the fact that HIV-infecting of young people is growing the focus will be on this group. The following objectives were formulated in order to achieve the goal:

1. To depict current HIV/AID prevention infrastructure.

2. To study existing media discourses relating to HIV issue through highlighting of its components by topic.

3. To specify subjective barriers in HIV testing.

4. To reveal correspondence between found components of media discourse and subjective barriers.

Hypothesis is as follows: media discourse includes inconsistent agenda towards HIV prevention/ testing among young people.

The process of research will be accompanied by studying of those variables which are supposed to be connected with the object and subject. As a result, it can be supposed that media discourse may influence subjective barriers.

To check the formulated hypothesis content-analysis of the online content of HIV test issue will be applied. Empirical data for it will be the data on `HIV test' inquiry (685 messages out of 5419 search results) from Medialogia platform, automated system for monitoring and analyzing media and social media in real time. Data array will be processed, compared and the conclusions will be made as to the relations to the subjective barriers.

In order to structurize the work the following chapters are foreseen:

1. The first chapter is purposed to characterize general system of HIV/AIDS prevention in Russia; media discourse essence and it social impact, as a whole, and connected with HIV/AIDS issue, in particular; subjective barriers of Russian youth in HIV prevention. Due to this information it is possible to estimate the degree of the puzzle between state efforts in HIV/AIDS prevention and media streams from the point of view of theory.

2. The second chapter is devoted to the plan of the survey provided for confirmation or denial of the hypothesis. It is also supported by the explanatory information.

3. The third chapter is devoted to findings connected with two studied variables. All the attempts made in this chapter are directed to achieving of the objectives preparing the ground for analysis leading to confirmation or rejection of hypothesis of the study.

4. The fourth chapter is devoted to comparison of all the theoretical and practical results.

1. Existing HIV/AIDS prevention system and media environment

This chapter is purposed to characterize general system of HIV/AIDS prevention in Russia. It also directed to study media discourse essence and it social impact, as a whole, and connected with HIV/AIDS issue, in particular. These two points will give the possibility to estimate the degree of the puzzle specified in the Introduction. Special attention will be devoted to the issue of subjective barriers of Russian youth in HIV prevention. Totally, this chapter depicts theoretical basis of the stated problem.

1.1 Characteristics of state HIV/AIDS prevention system in Russia

1.1.1 State efforts in the area of HIV/AIDS prevention

In Russia main directions of the state policy to counteract the HIV / AIDS epidemic are identified. They are as follows (Mazus, 2011):

- information activities aimed at preventing HIV infection among various population groups;

- maintaining a high level of population screening for early detection of HIV infection and preventing further transmission of infection;

- providing 100% of access to medical care for HIV-infected people using high-tech methods for diagnosing the immune and virologic status and providing modern, expensive medications;

- prevention of mother-to-child transmission of HIV infection in all treatment and prevention institutions in Russian Federation;

- ensuring safe donation.

As practical result integrated system of medical care for HIV-infected people has been created, including:

- a network of specialized medical institutions (more than 100 centers for the prevention and control of AIDS and more than 1000 laboratories for diagnosis of HIV infection);

- a unified system for monitoring the HIV / AIDS epidemic;

- medical supervision, diagnosis and treatment of HIV-infected persons is carried out in accordance with the standards approved by the Ministry of Health of Russian Federation;

- palliative care programs for patients with HIV infection have been introduced;

- realization of preventive projects is carried out together with public and non-governmental organizations.

Special infrastructure existing in Russia to overcome complex situation with HIV epidemic consists of 81 federal Aids centers, 3657 infection doctor's offices in policlinics, 655 offices of psychosocial consulting and testing including anonymous. Comparison the data related to preventive measures through this system show that in 2010 25,9 million people were tested for free, while in 2017 it increased up to about 34 million people (more than 1/5 of the population) (Ministry of Health, 2018).

On the level of state policy the current regulations are connected with fulfillment of Federal and local programs in the correspondent direction which is confirmed by creation of special information web-portal in 2011 (O-spide.ru, 2017). Among them there are: (Urazbagambetov, A. et al, 2013):

1. President program in the field of health care which has been conducted since 2006. (President Grant Fund, 2018).

2. In connection with decision of G8 Russia takes part in the international activity in the field of improving HIV monitoring. This direction is financed by Federal budget according Government Decrees. (Portal of State programs of Russian Federation, 2018).

3. In the frames of execution of national project in fight against AIDS in cooperation with Global Fund, governmental and non-governmental organizations there are the results in processing and testing of technologies for providing of antiretroviral therapy adherence in HIV-infected patients. Besides, there is the perspective to develop criteria of HIV-prevention programs estimation. Among the results there are: creating of multi-professional teams; `equal-to-equal' consulting implementation; preliminary programs in antiretroviral therapy for HIV-infected; recommendations in antiretroviral medicines buying.

It should be also said that big attention in the direction of HIV-prevention is paid to the family having the problem. It is explained by the fact that it should have the possibility to have healthy children. New technologies can help in it giving possibility to infected woman to born healthy child after prophylactic treatment.

4. Speaking about regional programs different types can be mentioned:

- HIV-prevention programs conducted by special centers both on the constant basis and in cooperation with international organizations. The focus of these programs is on information on HIV/AIDS, forming of active life position, and prevention methods.

- Some programs are purposed for awareness-raising among population. They are expressed in publishing of booklets about introduction of infection and prevention methods.

5. Programs conducted in educational institutions to increase awareness about the epidemic. (Ustyuzhanin at al. 2016).

6. Different mass events involving representatives of different social groups. Action STOP HIV/AIDS (STOP HIV/AIDS, 2018) is the most significant.

All mentioned efforts are just different steps which help to fight against epidemic. For a long time in Russia there was not any consolidated program. Now it exists. It is called State Strategy for Counteracting the Spread of HIV Infection in Russia for the Period to 2020 and Further Prospects (Russian Government, 2018). It is based on the exposure of infected people and information sharing. Unfortunately, now it bears only declarative character as the plan of execution is absent. However, positive moment is that the problem is not ignored at the highest level.

1.1.2 HIV prevention system in Russia

Along with state efforts in the field of HIV/AIDS prevention special voluntary public group, supported by Russian authorities and establish in 2003, exists. It is national collective coordinating and advisory body called County Coordinating Mechanism to fight HIV/AIDS and epidemic in Russian Federation (Federal Center of AIDS, 2017) guided by National law, CCM Statute and Global Fund recommendations. Since its creation, CCM has played a leading role in the country's national response to the HIV epidemic.

This organization includes 33 member organizations, which appoints 33 CCM member representatives. The members take part in CCM meetings held on a regular basis no less than 6 times per year. Coordination of this voluntary public group is fulfilled by its Secretary who carries out administrative support, meeting organization affairs. Technical and financial support of the organization is executed by UNAIDS and Global Fund Global Fund to Fight AIDS, Tuberculosis and Malaria.

Main functions of CCM include support of new applications preparation, review and submission to the Global Fund; grant oversight and grant effective implementation control in accordance with the Global Fund requirements.

These functions are executed within the frames of the following Global Fund grants for HIV/AIDS prevention:

1. Epidemic Effective National Response stimulating;

2. Promotion providing to Strategic Response to HIV/AIDS treatment and care for vulnerable people.

3. Scaling up access to HIV prevention and treatment by strengthening HIV services for injecting drug users.

Among other fields of CMM-coordinated projects are the support of federal HIV programs.

The structure of the Mechanism work is depicted below.

Figure 1. Main sectors of HIV prevention work of CCM mechanism

From the point of view of HIV/AIDS its blocks can be represented as follows:

1) Academic / Educational: Federal AIDS Center; Federal Research Institute for Epidemiology; Central Research Institute for Health Care Organization and Informatization, Novosibirsk.

2) Government sector: Ministry of Health and Social Development; Federal Service for Consumer Rights Protection and Human Well-being; Ministry of Foreign Affairs; Ministry of Finance; Ministry of Justice (Federal Service for Sentence Execution); Federal Drug Control Service.

3) Multi/bilateral partners in development: UNAIDS; WHO; World Bank; European Commission Delegation in Russian Federation; USAID.

4) Principal recipients: Open Health Institute; Russian Health Care Foundation; Russian Harm Reduction Network (ESVERO).

5) Non-governmental organizations: Sent-Petersburg Regional NGO `Vozvrasheniye'; Novosibirsk NGO `Humanitarian Project'; Public Clarity Foundation to fight AIDS `Shagi'; Russian Red Cross; Russian Medical Society; International Federation of Red Cross and Red Crescent Societies; `Partners in Health' Charity Foundation; National NGO Forum.

6) Effected people: Community of People living with HIV; Public Movement of PWH `Shagi'; All Russian Union of PWH; Two Regional divisions of Russian Union of PWH in Volga and Southern Federal Regions.

It should be mentioned that this mechanism works not only on the Federal but also on the Regional level. In addition to the structures of Ministry of Health and Social Development, including Federal AIDS Center, the latter unites correspondent District Centers (North-West District Center, Privolzhsky District Center, Ural District Center, Siberian Circuit Center, Southern Circular Center, Far Eastern District Center) which include different and Regional AIDS Centers (Ministry of Health, 2000).

Federal AIDS Center, being the central part of the mechanism, carries activities in accordance with the annual work plans agreed with the Department of State Sanitary Epidemiological Supervision of the Russian Ministry of Health and report about its work and the work of District Centers. The Center's activities are financed from the federal budget allocated by the Ministry of Health of the Russian Federation for the current maintenance of the Central Research Institute of Epidemiology. Correspondently, it coordinates distribution of sources for the regions.

All above data shows that CCM is the leading coordinating body of HIV/AIDS in Russia with long-term perspective. At the same time, it has some drawbacks connected with absence of connection between main members on the constant basis. Cooperation is executed when it is necessary to get international financing. Received funds distribution process is coordinated on the Federal level, however there is no cooperation: each block of the scheme functioning separately. Connections are executed only with donor body. Constant connections are seen on the level of AIDS centers and medical institutions.

Observing mentioned peculiarities of prevention system in Russia says about huge efforts from the side of different actors. At the same time they seem insufficient in the circumstances of the growing number of new cases. Of course, the interaction between the actors should be firmed but anyway there are first positive results which can be seen in the resent two years: in the growing number of tested people the quantity of positive cases began to be shortened. (Perm AIDS Center, 2018)

Figure 2. Results of testing Russian Federation population for HIV in 1991-2017.

Following the specified puzzle of state efforts and media streams, it is worth paying attention to the issue of media discourse.

1.2 Media discourse in HIV prevention

1.2.1 The notion of discourse through the prism of influence mechanisms

The influence is important element in the structure of communication, conditioned by the content of the activity, the structure of the roles, the goals of communication, and the individual psychological characteristics of the participants in communication. Being a part of the structure, psychological influence touches upon features of the person (mental processes, phenomena, states, cognitive, affective and behavioral spheres of personality, personality as a whole.) or group consciousness and processes. (Sventsitsky, 2005). As a result of impact the following components of the recipient are transformed: beliefs, perceptual stereotypes and attitudes. (Matyash, 2010)

The problem of psychological influence underlies the phenomenon of social influence, a process, which involves changing behavior, feelings and thoughts to a certain stimulus of one person under the influence of another. (Zimbardo & Leippe, 2001). It means that behavior is formed in the process of social interactions and takes into account current norms, regulations, etc.

The basis of social influence is the psychology of the masses (Lebon, 1995) related to three environments: the interpersonal, the conviction and the specially formed by media. Differences in them will be determined by the direction (individualized or personal) and the degree of coverage of the target audience. (Zimbardo & Leippe, 2001)

R. French and B. Raven believe that the phenomenon of social influence is most noticeable in conditions of dependence on the opinions and preferences of others. At the same time situation of influence assumes the following options for continuing interaction: opposition to influence, conflict, coercion, conformal behavior, subordination, which are distributed by social psychologists as forms and modalities of influence. (Turner, 2003)

H. Gardner highlights the levels of influence with their agents, the scale of change and the corresponding levers:

1. The level affecting such heterogeneous groups as nations, where the agents of influence are the leaders of the countries and the scale of the changes being made is enormous.

2. The level of homogeneous groups, where the agents of influence are the leaders of political parties, corporations, public organizations, media, etc. The scale of the changes is quite large, but less than at the first level.

3. The third level includes individuals who make changes through the creation of works of art or scientific achievements. These changes are significant in terms of cultural development of society.

4. The fourth level includes formal educational institutions, in which agents of influence are well-known teachers who provide significant changes in the field of education.

5. At the interpersonal level, the function of the agents of influence is performed by meaningful others (close relatives, friends, mentors, etc.). Despite the fact that changes occur on an intimate-personal level, they are also large-scale.

6. The personal level is associated with changes in the person.

E.Hoffman (1984) believes that various ways of social impact are designed to manage impressions. It allows to influence the affective sphere of the individual, making him more open to influences. E.Jones and T. Pittman (2002) believe that the methods of interpersonal influence underlie self-representation strategies.

It should be noted that social influence is built on different approaches affecting attitudes. Overview of the literature showed that social influence is purposed to accurately recreate the model of attitude formation in a desired direction. The two main methods of forming and changing attitudes in the public consciousness are persuasion and suggestion.

Specified points of view fit the theory of T.A. van Dejk devoted to discourse (van Dejk, 1997) where this concept is represented from two sides. General side is communicative event between two partners; particular side is represented by oral or written text, taking into account the presence of only one verbal component. From this perspective, the term `discourse' denotes the completed or continuing `product' in the form of written or oral result interpreted by recipients.

Media have an increasing influence on people's perceptions. They can be both positive and negative because of threatening, harmful, dangerous situations. This last direction of perceptions based on social problems and security threats (including the spread of HIV / AIDS) are usually created by the channels of mass communication (TV news, newspapers, radio programs, Internet resources) pushed by the power rhetoric (President, Prime-Minister, representatives of different state authorities). (Yasaveev, 2016)

As soon as the present work is focused on the study of the youth, social influence of the state directed to this age group is worth considering. Based on the existing information special state programs, youth forums, meetings and other events, including those with the participation of the President of Russia are conducted. Within all these events the keynotes of power rhetoric towards young people there are `threat', `protection' and `traditional values'. Authorities actively use the construction of `traditional values', promoting conformism and preserving `stability', without determining exact cultural traditions. These values are declared as `true' and opposed to `quasi-values' without clarifying the principles of such division. Generally speaking, pragmatic relation of the state to the youth is expressed in the problematization trend. (Yasaveev, 2016)

Parallel to this, representatives of different media process primary information based on certain principles of selection. As a result, the reality designed by the media differs significantly from the everyday concerns of most individuals. (Yasaveev, 2005) As a consequence, the media audience often develops, on the one hand, unreasonable fears and anxieties, and on the other hand, an underestimation of certain risks. A typical example of the latter case is views of the Russians on the situation with HIV / AIDS.

In these regards analysis of media discourse can be represented as social influence of media the youth. The degree of this influence will be defined by the audience reach (its quantity) and it's targeting. At the same time the result of the impact can be expressed in some modifications of beliefs, stereotypes and attitudes which may be reflected in the behaviour. Another variant is that behaviour can be changed quickly under the influence of media while attitudes demand more time to be changed. One of the ways to study mentioned changes is to understand the current situation with all these components, and compare them after informational influence. In connection with it the necessity to consider HIV/AID media discourses in Russia arises.

1.2.2 Existing HIV /AIDS media discourses in Russia

Unlike poverty, homelessness, unemployment and other phenomena, the public does not directly come into contact with HIV / AIDS, but mainly through images offered by the media, and these images define perceptions and actions with regard to the problem. (Albert, 2000)

Since 1996 the level of attention to HIV / AIDS problem of Russian media in the second half of the 1990s - the beginning of the 2000s has significantly decreased. The largest number of materials was published in 1987, when HIV was first registered in the USSR, that is, when it was sensational and shocking news. A significant number of articles in 1994 appeared due to the availability of such information reason as the development and discussion of the Law `On preventing the spread of the disease caused by the human immunodeficiency virus (HIV infection) in the Russian Federation'. Subsequently, the frequency of occurrence of such articles varied, but since 1997 the number of newspaper publications on this topic is small (with the exception of 2000), although within this period the number of registered HIV cases was rapidly increasing. (Yasaveev, 2006)

Turning to the studies of the 1990-s, the following units can be seen in the information flow:

- regarding the appearance of new drugs: `invention', `medicine from AIDS';

- myths about terrorizing surrounding with infected syringes: `AIDS-terrorism', `unknown with syringes';

- stamps: `plague of the XXI century', `risk groups' (instead of `vulnerable group'), etc .;

- labels: `homosexuals', `drug addicts', etc .;

- regarding the origin of the problem in the 1990s: `American syndrome', `AIDS vaccine', `plague from the West';

- confusion of the concepts `HIV' and `AIDS' (Savelieva, 1999).

Other researches on this topic confirm that in the end of 1990s - beginning of 2000s HIV/AIDS issue was not interesting for media (Efanov, 2017). They explain this fact by general principles of modern media activity. According to them the news should include sensation in order to attract attention of the audience. It is the possibility to earn at the expense of advertisement.

This trend can be notices nowadays, when journalists use such media strategies as moral panic inspiring (sometimes in relation to HIV/AIDS problem) based on the tools of symbolization and hyperbolization and its containment (popularization of HIV prevention and adaptation HIV-infected people in the society). (Efanov, 2017).

Above information shows that social influence of media may be multidirectional and sometimes bear negative emotional charge capable to change the behavior of recipients through formation of fears variety and further ignorance of preventive measures. It means that under the impact of different strategies media discourse can have its emotional characteristics. They can be exaggerated through the discussions in social media, thus, having additional influence the audience. (Panchenko, 2011)

Mentioned data draw the picture of negative background of HIV/AIDS media discourse. At the same time there is separate discourse of virtual communities. They have variety of goals and structures connected with the issue. (Rykov, Koltsova & Meilakhs, 2016) Correspondently, discourse and its emotional colouring depends on the type of the community.

Thus, this overview showed that HIV/AIDS media discourse has such primary source as power rhetoric. In these regards, media discourse itself can be considered as secondary, having its emotional characteristics, and be partially defined by the goals of each media source. The same can be related to the social media discourse.

1.3 Subjective barriers in HIV/AIDS prevention

1.3.1 The notion of barrier

Discussing of HIV/AIDS prevention barriers is based on the understanding of barrier notion. Notwithstanding the fact that consideration of this issue is predominantly studied in the frames of psychology (I.Pavlov (1949), S.L.Rubinshtein (1989), A.Leontyev (2003), R.Shakurov (1997), N.Podymov (1999), etc.) which as a whole defines it as an obstacle for action, it would be relevant to mention consideration of the barrier problem from the point of view of sociology based on the topic of the work. Below there are key positions associated with the present work:

1) The barriers are connected with external circumstances, which serve as an obstacle. Here G.Andreeva (1988) includes the factors of social order, conditioned by political, religious, professional differences of participants of activity, as well as their belonging to different social groups. In these regards discourse is also applicable notion as the factor of influence.

2) Barriers are determined by a number of internal factors. And in this context it is appropriate to talk about difficulties. Difficulties can be associated with the characteristics of education, namely, with rudeness, the habit of pushing on another person; they can arise due to the inability of a person to reveal himself, the lack of need for interaction, which is expressed in inattention to the partner, offensive condescension or direct indifference. These difficulties, on the one hand, are expressed in a special form of mental states and appear in external passivity; on the other hand, they are associated with various manifestations of personal individuality (displeasure, apathy, aggression, internal anxiety and fear, personality disorders and internal conflicts). (Andreeva, 1988)

3) The cause of the barriers is often determined by the situation in which the interaction takes place. For example, they can arise through inability to establish contact with a partner, through a violation of mutual understanding. S. Kiselgoff (1973) points out that psychological difficulty can be explained by a low level of development of communicative skills and habits of self-organization. Therefore, the thematic (content) and operational side of this interaction can act as a factor that generates barriers to interaction.

Mentioned sociological points of view can be understood as the reasons for barriers formation. There is a kind of domination of internal over external ones. This mechanism is activated through variety of social influences (including media). As a result, it may be said that formation of subjective barrier is the reaction to social reality. On the one hand, it is an obstacle; on the other hand it can be characterized as the driver for behaviour strategies. Whatever it was, the background of subjective barriers is norms of social group the person belongs to. Norms have a major influence on people's behaviours and this is especially the case among young people. (Adam et al, 2011)

1.3.2 The notion of stigma

In covering the concept of subjective barrier existing of external barriers mentioned in the previous paragraph should be paid attention and stigma notion, in particular. According to traditional beliefs, it is a characteristic feature of a person that significantly discredits him in the eyes of others, due to the social heterogeneity of the individual, his inability to identify himself with members of his community. (Borodkina, 2008) HIV / AIDS stigma being the basis for subjective barriers in relation to the infected people and the necessity of testing (Mahajan et al, 2008; Fortenberry et al, 2002) can spoil the efforts of the state in prevention measures.

There are several types of manifestation of stigma such as social, institutional, group and personal. In the context of HIV / AIDS they all take place and are usually interrelated. (Borodkina, 2008) In addition stigma can be external (directed from the outside to the stigmatized person) and internal (may be associated with the person's belonging to a certain group, but may have a purely individualized character). The most difficult situation is when an individual is simultaneously exposed to external and internal stigma, which often leads to destructive mental and social consequences. (Borodkina, 2008) Stigma leads to rejection, discrimination of its bearers. (Bovina & Bovin, 2013) The causes of these phenomena are usually the lack of information about the disease, the widespread false myths about HIV / AIDS, for example about the ways of HIV transmission. (Shakhgildyan, 2007) At the individual level, stigma has an impact on self-awareness, causing people to despair, low self-esteem, depression, at the community level - it affects preventive work, for example, leads to the rejection of HIV testing, from timely seeking medical help, and may affect the quality of medical and social assistance to HIV-infected people. (Pokrovsky, 2013)

In Russia, stigma and discrimination of people living with HIV / AIDS are quite common, especially in the male part of society, but these phenomena are latent. There is an inverse correlation between the level of knowledge on HIV / AIDS and the severity of stigma and discrimination. HIV-infected are subject to both external and internal stigma. Stigmatization phenomena also present in the medical environment; in particular, there is an emotional manifestation of external stigma, such as fear of possible infection, which can affect the quality of medical services to HIV-positive patients. (Chernyavskaya & Ioannidi, 2014)

Notwithstanding the fact that in Russia a legal framework has been formed to protect the rights of HIV-infected patients, the laws don't always work. The explanation is that real need is to change attitudes of the society towards this issue from ethical point of view. (Veshneva & Barkovskaya, 2012)

Attributes of HIV / AIDS stigma existing in Russian society can be confirmed by the results of research conducted in 2014 in Central Administrative District of Moscow (Belyaeva et al, 2015) and involved usual people and medical personnel (893 respondents). They are as follows:

- At the time when the majority of medical workers don't consider it necessary to contacts with HIV-infected people only 60% of respondents from general population demonstrate the same conviction. And the youth is that age group which predominantly considers it important to avoid such contacts, the same as people over 60.

- The majority of respondents in both groups demonstrated the absence of desire to share food with HIV-infected people, mainly, middle-aged respondents.

- Willingness to live in the same room with HIV-infected person was demonstrated by less than the half of respondents in each group, especially among people over 60.

- The assessment of the willingness to let the child go to a kindergarten visited by HIV-infected child depicted that almost half of respondents in both groups didn't have it.

- Along with fears of infection possibility during the contact, another stigmatization factor is the perception of HIV-infected people as a marginal social group. More than the half of respondents in both groups agreed with the statement that `HIV-infected people lead a disorderly lifestyle'.

- At the time when `medical workers' were more likely to object to the introduction of a record of people living with HIV through fingerprints representatives of general population were more likely to support the introduction.

It should be paid attention that the study was conducted not so long ago. And the amount of stigma phenomenon is confusing. Manifestation of a stigmatizing attitude in this sample demonstrates the possibility of people with similar attitudes to influence the motivation of patients for dispensary observation and treatment of HIV infection, limit the ability to timely conduct of medical and diagnostic activities and implement the concept of `treatment as prevention'. Moreover, such influence can be reflected on the efforts of the state to provide population with HIV tests as prevention measure.

In connection with existing media discourse it can be supposed that those public figures which form public opinion connected with HIV/AIDS issue may have the same stigmatizing attitudes and, thereby, aggravate the situation as a whole.

1.3.3 Basis for HIV testing subjective barriers of Russian youth

Existence of subjective barriers is connected with everyday understanding of the causes, nature, characteristics of the course of HIV infection and AIDS and it is diversified in society. Among the factors that determine it are as follows (Emelyanova, 2010a):

- macro-social: features of social policy in the field of health and disease, the impact of the media, etc.;

- microsocial: family education, friendships, etc.;

- economic and socio-demographic: sex, age, income level, level of education, profession, membership in the church, residence, etc.;

- socio-psychological (personal characteristics, psychological distance in relation to the infected person, peculiarities of communication in small groups and organizations, macro-psychological factors, etc.

These factors lead to different subjective barriers connected with HIV/AIDS. Looking through the foreign sources the following data can be specified.

One of American NGOs Medwiser (2018) paid attention to the fact that in 2006 the Center for Disease Control and Prevention, recommended to the people in the age of 13-64 to be tested, found out that the instructions fell short. Several studies which were conducted later demonstrated that the majority of efforts directed for HIV testing failed. The explanation was availability of the following subjective barriers:

- Stigma. Its essence was that peopled were feared of the opinions of other people in case of positive result. Also they were worried about possible discrimination because of positive status.

- Fear. First of all they were connected with future result as it was associated with death sentence.

- Risk factors. Many people didn't want to be tested as they were not at risk groups, so they considered that nothing threatened them. However, the studies showed that about 70% of infected people had previously the same point of view.

- Medical personnel and health care systems. This barrier pushed the Center for Disease Control and Prevention to change recommendations as to HIV testing. While previously only people from risk groups should be tested, further all the adults were obliged to do it.

In 2011 the group of Australian scholars (Adam et al, 2011) conducted the survey with specification of barriers to sex transferred infections (including HIV) testing. A sample of 1,100 sexually experiences participants aged between 16 and 26 years living in NSW, Australia were the object of the study. They demonstrated the fears and worries about future results in the following answers:

- Talking with a doctor about my sexual behaviour;

- The medical procedures involved in testing;

- My parents' reaction;

- My partners' reaction;

- Other people's reaction;

- Losing my reputation;

- Negative attitudes of staff in testing facilities;

- Testing staff talking about or giving out information about me.

As it is seen the answers remind the data from American NGO. The data about no relation to risk groups also presents in Australian research.

Another survey conducted in the UK (Deblonde et al, 2010) showed such barriers as low-risk perception, fear of HIV disease and its consequences, fear of disclosure (worries about stigma, discrimination and rejection by significant others), denial and accessibility of health services (especially for migrants). In the literature overview of this work it was mentioned that out of 24 studies published in international peer-reviewed journals 14 demonstrated the same results with the focus on stigma and possible discrimination.

As it was mentioned earlier, formation of subjective barriers is natural process and it is understood that young people may have them, including in relation to HIV testing. Speaking generally representatives of any age group can have such barriers. And in first turn, they are connected with public opinion accompanied by a tense attitude of a part of Russian society to infected people and this situation leads to social isolation of the latter. Public opinion associates dangerous social and behavioral characteristics with the diagnosis of HIV infection and creates a system of social restrictions (in employment, in personal relationships, etc.), resulting in excluding a person from the system of social ties. (Emelyanova, 2010b) And it is again the issue of stigma in the society. But speaking about the basis for barriers they can be as follows:

1) The perception of health care, the attitude to it and the way of using it. Health systems are complex. They contain many internal and external factors, real and perceived barriers that affect the use of the health system. For example, in low- and middle-income countries, in particular, access to testing and counseling is hampered by a limited number of HIV testing institutions, the lack of test kits in stock and correspondent employees. (WHO, 2011)

2) Diversification of understanding of the causes, nature, characteristics of the course of HIV infection and AIDS in the society. It entails various barriers depending on a particular country notwithstanding having something in common. (Emelyanova, 2010b)

The results of this basis may be demonstrated by the interview of STOP HIV/AIDS community in the social network `VKontakte'. The question `Have you been tested for HIV within the past year?' was answered by 29199 participants (Stop HIV / AIDS, 2018).

Figure 3. The results of the interview of members of Stop HIV/AIDS group (n=29199) connected with the question `Have you been tested for HIV within the past year?'

Notwithstanding the fact of age structure absence, the answers at the Figure 3 demonstrate the attributes of barriers presence. And they are connected with conviction of no necessity to be tested because the disease cannot happen to a person. At the same time they can be related to different fears either not specified or the situation of getting result. In the first case there is some mental filter which forms the obstacle for self-preserving behavior. Second case is probably connected with social influences.

These data correlates with other sources with availability both the first specified barrier (Brylina & Kuzyukin, 2016) and the fear of obtaining a positive result. (Shchendrigina & Burina, 2017) In their turn, these two barriers correlate with the ones which Europeans have. (Deblonde J. et al, 2010).

Consideration of the basis for HIV testing subjective barriers of the youth may be found in several studies conducted by Russian researchers. They were analyzed through those components which are connected with the notion of social influence (beliefs, stereotypes and attitudes), on the one hand, and different groups of respondents which took part in the mentioned studies. The results can be specified as follows:

One of the researches (Bovina, 2013) depicts that the beliefs and stereotypes of young people are built on the perceptions that AIDS is connected with death; that main ways of transmission are drugs, non-sterile syringes, and sex. At the same time they demonstrated negative attitudes to the diseased people while the repeated research showed respondent to be more tolerant to the infected people. Speaking about attitudes to the AIDS as the disease, it can be characterized as strong negative emotional experience or fear.

...

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